Thank you for attending PRIMR24! The 90-day access period for recordings and evaluations has now expired (cut-off was March 15, 2025). Recordings can be purchased via a link in the left hand navigation; members receive access to the recordings for free after one year (starting on November 17, 2025). Contact registration@primr.org with questions.
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Monday, Nov 18th
10:30 AM – 11:45 AM PTA01 - PLENARY: Reimagining Informed Consent Processes to Support Informed, Values-Concordant DecisionsLocation: Ballroom 3
Moderator: – Seattle Children's Research Institute
Panelist: – Geisinger College of Health Sciences
Panelist: – Advarra
Panelist: – NIH
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Monday, Nov 18th
1:45 PM – 3:00 PM PTB03 - Assessing Capacity to Consent for Research Participation: When and How Do You Actually Do It?Location: Ballroom 3
Speaker: – Mass General Brigham
Speaker: – Multi-Regional Clinical Trials Center
Populations Requiring Additional ProtectionsInformed ConsentAdvancing Equity and JusticeIRB ReviewSocial, Behavioral, and Educational Research
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Monday, Nov 18th
1:45 PM – 3:00 PM PTB04 - Ethical Implications and Practical Application of Broad ConsentLocation: Room 343-344
Speaker: – Huron
Speaker: – University of Texas, MD Anderson Cancer Center
Speaker: – Indiana University Center for Bioethics
Pharma/Biotech PerspectivesInformed ConsentResearch Involving Data and New TechnologiesIRB Review
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Monday, Nov 18th
3:30 PM – 4:45 PM PTC08 - Help! I Don't Understand: Making the Consent Process and Form Meaningful Through Health Literacy and Adult Learning TheoryLocation: Room 347-348
Speaker: – Nationwide Children's Hospital
Speaker: – Virtua Health
Speaker: – Rutgers, The State University of New Jersey
Informed ConsentAdvancing Equity and JusticeSocial, Behavioral, and Educational Research
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Tuesday, Nov 19th
10:30 AM – 11:45 AM PTD06 - The Limits of Permissible Research Without ConsentLocation: Ballroom 1
Speaker: – Advarra
Speaker: – Department of Medicine, University of California, San Francisco
Speaker: – Stanford University
Informed ConsentIRB Review
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Tuesday, Nov 19th
1:45 PM – 3:00 PM PTE07 - Using Artificial Intelligence (AI) to Author Key Information (KI) Sections of Human Research Consent DocumentsLocation: Ballroom 2
Speaker: – University of Michigan
Speaker: – SciTech Strategies, Inc.
Informed ConsentEmerging Research Challenges and Breaking IssuesResearch Involving Data and New Technologies
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Tuesday, Nov 19th
3:30 PM – 4:45 PM PTF03 - Key Information in Informed Consent: Ethical Principles, Policy, and PracticeLocation: Ballroom 2
Speaker: – HHS OFFICE FOR HUMAN RESEARCH PROTECTIONS
Speaker: – UC San Diego
Speaker: – University of California, Office of the President
Speaker: – Food and Drug Administration
FDA Regulated ResearchInformed Consent