C05 - IRBs Greatest Challenges for Youth-Centered Research

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During this session, speakers will discuss the challenges in youth-centered research including how to (1) assure the benefits outweigh risks; (2) appropriately recognize the concerns of guardians/parents without unduly restricting the conduct of important research; (3) obtain guardian/parent permission, especially in settings with low socioeconomic status; (4) review studies of adolescents with mental or physical disabilities; and (5) assure voluntary, autonomous recruitment and assent of adolescents. In addition, speakers will address the ways IRBs can support researchers who focus on youth including how to make participant-facing language simple, how to include standards and mores of families in research materials, and how to address the requirements and ethical concerns of research involving adolescents. The session will conclude with youth-centered sample text, reviewer checklists, and other tools for IRB reviewers and researchers.