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2024 PRIM&R Annual Conference

Legal Considerations in Research Oversight

Emerging Research Challenges and Breaking Issues

IRB Review

D01 - PLENARY: Responsibility Does Not End With Death: Establishing Systems for Ethical Decedent Research

Tuesday, November 19, 2024
10:30 AM – 11:45 AM PT
Location: Signature Room
Call for Session Proposal - CSP Live Streamed Session Human Subject Research - HSR Thought Leader Series CIP Accredited Live Session Recorded
CLICK HERE to view captioning for this session! 

The Common Rule offers a framework for protecting human subjects who are living individuals, but these protections do not extend to decedents. Recent investigative journalism has shined a light on the consequences of lacking regulations. Proposed bipartisan legislation, Consensual Donation, and the Research Integrity Act would help address these gaps. In this session, speakers will discuss historical ethical violations in decedent research, and share ideas about what individual institutions can do in the absence of federal regulations in order to ensure ethical treatment of this unique category of research participant and to uphold public trust.

Learning Objectives:

  • Learn about ethical violations that have occurred with decedent research
  • Understand the current laws and regulations that do/do not relate to decedent research
  • Consider how to support ethical research with decedents