E04 - Building Trust in Science: Enabling Frameworks for Returning Individual Research Results to Research Participants

CLICK HERE to view captioning for this session! 

As the research paradigm shifts to becoming more participant-centered, calls to return research results have grown as a means to promote respect for participant autonomy, facilitate long-term engagement, and further recruitment of diverse participants in studies. However, returning results to participants is not without its challenges, including navigating a complex regulatory environment, ethical considerations, and the need for infrastructure and support. This session will explore emerging frameworks, tools, and best practices in returning individual research results, including beyond genomic data, while highlighting current gaps and opportunities.