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Evaluation On-Demand Video

2024 PRIM&R Annual Conference

Populations Requiring Additional Protections

IRB Review

Social, Behavioral, and Educational Research

H02 - Group Harm: A Toolkit for Researchers, IRBs, and Data Access Committees

Wednesday, November 20, 2024
10:30 AM – 11:45 AM PT
Location: Ballroom 2
Human Subject Research - HSR Call for Session Proposal - CSP Learning Lab Series Live Session Recorded Live Streamed Session CIP Accredited
CLICK HERE to view captioning for this session! 

One of the primary risks of biorepository-driven research is group harm. This harm may hinge on features of self-identified communities (e.g., geography, disease, sexual orientation) or be algorithmically-defined as a result of research practice uninformed by community contexts using features known or unknown to individuals. Speakers will review a toolkit designed to support researchers' and oversight boards' systematic consideration of the wide range of community interests in research planning and execution.

Learning Objectives:

  • Understand the risk of group harm posed by biorepository-driven/secondary data use research
  • Contextualize this risk within existing research regulations and oversight requirements
  • Critically apprise a novel toolset designed to aid in the positive consideration of group interests in biorepository-driven research